An Evening in Wine Country
In Support of 'Mirjana's Movement'
An Evening in Wine Country
In Support of 'Mirjana's Movement'
Included with purchase of ticket:
1, 2, or 3 (dependent on ticket purchased) door prize entries for a $2,500 Flight Centre Gift Card:
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-Appetizers by Shaughnessy's Cove and a delightful glass of wine from SummerGate Winery
-Dinner: A mouthwatering Onsite Pig Roast Feast complete with Desert.
(A vegetarian option is available upon request.)
-A fun evening of entertainment by:
Moving Lines
Hillside Outlaws
BC Buds
Niki Martinus
-Live Auction
-Wine Rack Auction
Also, don't forget to check out our online silent auction items here. New items will be added regularly so check back often.
NEW DATE: On Saturday, May 28, 2022, SummerGate Winery in Summerland is hosting
‘An Evening in Wine Country’ to raise funds so Mirjana can continue to afford the Ofev treatment until BC PharmaCare approves the medication. Please help us help Mirjana with her Movement. Join us for a fun-filled evening.
There will be loads of entertainment, great food, and live auction items to bid on.
***Should health restrictions change, this event may be postponed. In the event of a postponement ticket purchasers may choose to attend at the rescheduled date or request cancelation of their ticket purchase and a refund by e-mail at mirjanasmovement@gmail.com***
September is Pulmonary Fibrosis Awareness Month.
30,000 Canadians have been diagnosed with pulmonary fibrosis., about 5000 die each year. Patients with
Pulmonary Fibrosis (PF) are told life expectancy is between 3 –5 years after diagnosis. Pulmonary fibrosis is a lung disease that occurs when lung tissue becomes damaged and scarred. This thickened, stiff tissue makes it more difficult for the lungs to work properly. As pulmonary fibrosis worsens, patients become progressively more short of breath.
There is no cure.
Things can change. With early detection, pulmonary rehabilitation, and medication, patients can live longer, more productive lives by slowing the progression of the disease. Ofev, a new drug approved by Health Canada, isfor use in patients with PF, Inessential Lung Disease (ILD). In British Columbia, Ofev has not yet been approved for patients with certain PF indicators.Mirjana Komljenovic, community advocate and leader, Summerland resident,business leader, has PF. She was born with Albinism, from which a disorder called
Hermansky Pudlak Syndrome(HPS)developed, and as a result of HPS, Mirjana now has Pulmonary Fibrosis. Despite, or maybe in spite of her many obstacles, Mirjana has thrived. In November 2020 Mirjana started the very expensive Ofev treatment to slow the progression of PF. Her peers, colleges, family, friends and even strangers contributed to “Mirjana’s Movement.” Her “Warriors” as she calls them started the movement to raise the $4000 a month needed to purchase Ofev. So far, they have raised over $35,000 toward Mirjana’s Movement. With medication, rehab, and other techniques, Mirjana is doing great.
ALL OF US FROM
'MIRJANA'S MOVEMENT' WOULD LIKE TO THANK ALL THOSE WHO SPONSORED AND DONATED TO THIS EVENT!
WE CAN'T EXPRESS HOW MUCH WE
APPRECIATE IT!
Please sign our petition!
From the petition: "We, the undersigned, call on Minister Dix and BC PharmaCare to reconsider their decision to provide access for Ofev to
Mirjana Komljenovic immediately. In addition, on behalf of residents of British Columbia suffering from progressive fibrosing interstitial lung
diseases (PF-ILD), we respectful ask BC PharmaCare to urgently provide access to Ofev as per the CADTH recommendations."
Please click here to go to the petition on change.org